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Post by sweeneystr8blade on Apr 14, 2008 0:11:47 GMT -4
I understand most of you really don't know me on this forum.I've been away quite some time also because of health issues.Anyways I know since some of you are near my area maybe you know of some resources that could possibly help me.So you'll understand what I'm talking about I'll give you a little information.My name is Simon,I'm 26 years old and a native of NC.I found out last October I have a rare genetic condition called Von Hippel Lindau.I had a tumor removed from the right side of my spinal cord that was attached to the base of my brain.Two weeks ago I went to the doctor to see about my upcoming surgeries on my kidneys (I have cancer in both..caused by my illness).Well I must be the only person I've ever heard of who has stumped Baptist Hospital.They basically gave me two choices.Stay here and have both of my kidneys removed and be on dialysis for the rest of my life (or until I can get a transplant which isn't promised) or go to The National Institute of Health in Bethesda,Maryland for a week to get a treatment they are giving that could either cure it or at the least stop the growth of the tumors for five to ten years.My girlfriend and I are trying to get the money up to go to Maryland but it's a nightmare.My family for whatever reason isn't helping (and I don't feel like I should have to beg them to help).I've been out of work since last October and my girlfriend has a job that pays barely more than minimum wage.No I'm not on here begging for money.I've still got a little too much pride for that.What I am asking for however is knowledge.If anyone knows of any organization that could help us get the money (everything is paid for except the motel room for a week and it's close to washington D.C. so you can imagine how expensive it is) please leave me a message on here or private message me.I really don't know what else to do...So I'm asking you guys if you know anything please let me know.
Thank You,
Simon
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Eikon
GHNC Leader
Posts: 253
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Post by Eikon on Apr 14, 2008 1:47:37 GMT -4
Hi Simon, I am very sorry to hear about your illness and I hope that someone knows of a foundation that can help you with the medical bills. I know you said you weren't looking for money, but we have a banner ad on this forum that raises funds for just such a purpose. I think everyone would be happy to know that their ad clicks are going towards helping a fellow hunter in need. Do you have a PayPal account or other means of accepting a donation? Please PM me with the info. God bless,
Eikon
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Eikon
GHNC Leader
Posts: 253
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Post by Eikon on Apr 15, 2008 3:14:46 GMT -4
I just got your PM, Simon. The donation will be sent tomorrow morning USPS with delivery confirmation. I am hopeful that the treatment in Maryland will go well, please keep us updated.
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Post by sweeneystr8blade on Apr 15, 2008 5:30:18 GMT -4
Just wanted to say thank you again to Eikon and everyone else who has ever clicked on a link and made this donation possible. I'm going to the Urology Clinic at Baptist Wednesday to talk with my doctor and hopefully he will have set up my date to go to Maryland.From the few people I talk to on a Von Hippel Lindau support group online they usually set up the appointment two weeks to a month in advance. As soon as I know anything I'll be sure to post and let everyone know what is going on. You've given me hope and that is a great feeling.
Simon
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NCBec
Soul Warden
Carolina Supernatural Investigations & Research
Posts: 208
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Post by NCBec on Apr 16, 2008 0:00:55 GMT -4
I am so sorry to hear about your disease. Just know that I will keep you in my prayers. Being curious of what this disease is, I did some searching & found this site, I hope it helps. God Bless You! www.vhl.org/newsletter/vhl2001/01chtrav.php
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michael818
Master Hunter
Camel City Spirit Seekers... "Don't Be Afraid!!!"
Posts: 1,202
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Post by michael818 on Apr 16, 2008 14:24:09 GMT -4
Most of the major hospitals also offer financial assisitance, though they may not broadcast that. I had to get help once when I had to go to the hospital in Elkin. I will be looking around to see if I can find anything out about foundations and things. Prayers are up for you, ever since you first told me this privately.
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dragontemptress
Orb Adept
I could say normal people scare me but is there anyone normal????
Posts: 90
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Post by dragontemptress on Apr 28, 2008 7:10:12 GMT -4
my heart goes out to You Simon and i so hope all goes well for You
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NCBec
Soul Warden
Carolina Supernatural Investigations & Research
Posts: 208
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Post by NCBec on May 8, 2008 23:03:30 GMT -4
I hope that you are doing better, please come back & tell us about your updated doctor visits or treatments. Take Care!
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chad
Soul Warden
Posts: 277
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Post by chad on May 9, 2008 22:42:18 GMT -4
Simon I hope all is well you are in my prayers and I put you on the prayer list at church. hope it is o.k to have done that.
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Post by Nick on Sept 9, 2008 17:46:14 GMT -4
Hi,Back in "92 me and my ex(now) were with her cousin in her car on our way to Elkin,N.C. north on I-77 from Statesville(where we lived).We used to go up there and cruise and stuff,i was 19 and did not drink or use any drugs(honest),so my judjment was clear as itis now if not more.Anyways her cousin had talked about this dirt road she had been on and the strange event that would happen.Well we said "sure we'll go" me beleiving it was just a stupid girl freakout over nothing.So we went down the dirtroad and stopped at the bottom of a low spot in the road.It was around 5pm or so in summer,clear day and all.The car (Ford escort gt w/3 persons)turned off and out of gear.We sit there as she told the story:Some/couple kids got killed by being run over right in that area.And they would push ANY vehicle out of that area,hence pretty steep UP HILL! Yea right,i thought,till after a couple minutes the car started to crawl along then started to pick up speed,all the while going uphill!It got as fast as a fast steady pace.She even tapped the brakes which did slow it just a second but it kept going till it got a good distance from where we had sit and to top it all off when we got out andlooked at the back of the car,remember it's a dirtroad,there were prints of several small hands visable on the back of the car.I sit in the back seat all that day and while we where there i never saw anything as i looked back when this happended.I understand physics pretty well and at 35 ,to this day i don't understand it but IT HAPPENED!! If anyone knows of the road/area this occured please contact me!It was around halfway between Statesville and Elkin N.C. maybe on highway 21. I did'nt know the area then an know it less now.I think i was so taken by what occured i was oblivious to anything else including street names.Thank you,Nick badponyo@yahoo.com
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michael818
Master Hunter
Camel City Spirit Seekers... "Don't Be Afraid!!!"
Posts: 1,202
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Post by michael818 on Sept 16, 2008 10:09:16 GMT -4
The Gravity Hill I am familiar with near Elkin is off 21 at the foot of the mountain. it's actually OLD 21! This is a widespread ghostly legend, almost as much so as the vanishing hitchhiker. it includes the story of the busload of kids struck at a train crossing, who supposedly push you over the tracks. never mind that the alleged bus accident NEVER HAPPENNED THERE, and the accident that did occur in the nearby area was NONFATAL! Most often, these places are the effect of an optical illusion. The surrounding terrain makes it appear you are moving uphill, when, in fact, you are being pulled downhill by gravity! There might be something to SOME of them, but this is overwhelmingly the case.
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